Description
The ERICA Patient Reported Outcome Measures (PROMs) Repository is the first attempt to identify and centralize Clinical Assessment Outcomes questionnaires of relevance for rare diseases and constitutes a milestone in the Europe-wide standardization of Patient-Centered Outcome Measures (PCOMs) and PROMs for rare diseases. It has been made possible through the joint collaboration between Orphanet, Mapi Research Trust/ICON and ERN EuroBloodNet (VHIR, APHP), and the active contribution of ERNs and ePAGs. Available at ERICA website: ERICA PROMs Repository
Resources
| Name | Format | Description | Link |
|---|---|---|---|
| Unknown Resource | Unknown | Open resource | |
| Unknown Resource | Unknown | Open resource |