Illness episodes of clients of general practice participating in Nivel Care Registrations Eerste Lijn (from 01-01-2018)

Description

This file contains all disease episodes of people registered with general practitioners who participate in Nivel Care Registrations Eerste Lijn (NZR). A disease episode consists of one or more contacts with the general practitioner for the same complaint or illness and indicates during which period during the reporting year the complaint or illness was present. The complaint or disease in question is marked with a diagnostic code, coded according to the International Classification of Primary Care-1 (ICPC-1). Each record involves one disease episode, individuals may have multiple disease episodes in one year and thus occur several times in this stock. These files can only be used within the CBS after the permission of Nivel, the use is associated with costs. External researchers can submit a data request via the Nivel website. After approval, Nivel will in most cases (for a fee) create a specific custom file that is focused on the research question. More information on how to access the data: > https://www.cbs.nl/nl-nl/onze-diensten/maatwerk-en-microdata/microdata-zelf-onderzoek-doen ### Methodology The data from this file is used in combination with the data from the NZRClient file, which contains the data on all enrolled patients with the NZR general practitioners. A disease episode (further called &episode ') is the period between the time a patient first comes to the GP with a complaint and the moment the disease is healed or the patient has died. In chronic diseases, an episode is not closed, but people continue to count for that diagnosis over the years until the patient dies. Episodes of diseases or conditions of which the patient can heal are automatically closed if there has been no contact with the GP for a specified period of time. This shutdown period varies by type of condition and varies between 4 weeks and 1 year after the last contact. The end date of the disease episode is then established on the date of last contact plus half of the cut-off period. There is no direct relationship between the number of episodes and the number of GP contacts of a person. An episode may consist of one or more contacts with the GP over a longer period of time, while during a contact with the GP several topics may be discussed that belong to different episodes. This file contains the episodes that were present in (part of) the reporting year with clients present in NZRClient. This stock also includes a high weight, with which the results of the episodes can be increased to the entire Dutch population. For each disease episode, the start and (estimated) end date are displayed. Because chronic diseases do not close the episode, disease episodes of chronic diseases do not have an end date. If a client was enrolled in a practice that supplies useful disease episodes, but there are no illness episodes of the client in this file, the client has not had any disease episodes in the year under review. As of fiscal year 2018, Nivel no longer supplied raw source files to CBS, but reprocessed files that Nivel used for its own analyses. These reworked files contain largely the same variables as the raw files, but some registration errors have already been removed from them, such as duplicate records based on the Nivel patient number. As of fiscal year 2018, six variables have no longer been included in the episode file provided by Nivel. These include additional data per disease episode, namely the dates of the first and last contact and the number of contacts with the general practitioner in the context of this disease episode, and the dates of the first and last prescriptions and the number of prescriptions of medicines for this disease or condition. These variables are still present in NZREpisode, but are no longer filled. The 2018 client base includes relatively fewer clients than the files of previous years (approximately 10 % less), because the NZR practices connected to one particular General Practitioner Information System (HIS) had not yet provided data at the time of Nivel’s production of the analysis files. As a result, fewer disease episodes were included in NZREpisode in reporting year 2018. ### Population Disease episodes constructed by Nivel from persons enrolled in general practice participating in Nivel Zorgregistrs Eerste Lijn (NZR).

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Tags

  • eerstelijnszorg
  • microdata
  • data-governance-act
  • odissei
  • dga
  • huisartspraktijk
  • gezondheid
  • zorggebruik

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