Belgian Pulmonary Hypertension Registry

Description

Pulmonary hypertension or PH is a disease were the pressure in the lung vessels (small circulation) is elevated. This should not be confused with increased blood pressure in the large circulation (arterial hypertension). It is a severe and progressive disease, leading to exercise limitations, right heart failure and ultimately death. The signs and symptoms of pulmonary hypertension in its early stages might not be noticeable for months or even years. As the disease progresses, symptoms become worse. Pulmonary hypertension symptoms include: shortness of breath (dyspnea), initially during exercise and eventually at rest, fatigue, dizziness or fainting (syncope), chest pain, swelling (edema) of the ankles and legs, bluish color of the lips and skin (cyanosis), racing pulse or heart palpitations. PH is classified in five groups, based on underlying condition. Group 1: pulmonary arterial hypertension, group 2: pulmonary hypertension caused by left-sided heart disease, group 3: pulmonary hypertension caused by lung disease, group 4: pulmonary hypertension caused by chronic blood clots, group 5: pulmonary hypertension with unclear or multiple mechanisms. Group one is a rare disease and the care is managed in specialized expert center with the collaboration of a multidisciplinary team. Given the rarity of the disorder, its complexity and the anticipated cost of therapy to the NHS, specialist centers working in a collaborative way, offers best patient care. PH is hard to diagnose early because it's not often detected in a routine physical exam. Even when the condition is more advanced, its signs and symptoms are similar to those of other heart and lung conditions. The diagnosis procedure consist of: an echocardiography, blood sampling, right heart catheterization, ECG, .. etc. PH can't be cured, but specialized medical treatment and surgery (only for patients of group 4) can improve the symptoms and slow down the progression of the disease.

Resources

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Tags

  • snomed-ct-70995007
  • icd10-i00–i99
  • belgië-(country)
  • project-in-preparation
  • hdbp0196
  • interuniversity-consortium-of-centers-for-pulmonary-hypertension
  • pulmonale-hypertensie
  • belgique-(country)
  • hypertension-artérielle-pulmonaire
  • belgium-(country)
  • hypertension-pulmonaire
  • mesh-d006976
  • pulmonary-hypertension

Topics

  • HEAL

Categories