Belgian familial adenomatous polyposis registry
Description
The main objective of the registries is to improve the prognosis of patients through early diagnosis and preventive treatment. Systematic and regular screening of family members at risk of developing a disease has been repeatedly proven.
Patients are better monitored if the type and frequency of screening are based on collaborative and interhospital research, resulting in standardised procedures. An additional benefit of maintaining a national register is the pooling of all available data and making it available for further analysis.
The registry allows people with an illness or disorder to be informed about the cause and nature of their illness, as well as what measures they can take for their health. This improves patients’ involvement in their health, which has an impact on adherence to treatment and well-being. In addition, there are international registries of people with genetic tumors.
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Tags
- hdbp0175
- 0c0aae17-7948-5e10-b637-9643e8bbdfbd