Belgian Lynch syndrome registry
Description
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<\/p>\r\nL\u2019 main goal of the registries is to\u2019am\u00e9improve the prognosis of patients gr\u00e2ce \u00e0 a pre\u00e9coce diagnosis and \u00e0 a pre\u00e9ventive treatment. Systemic and regular screening of members of a family \u00e0 risk of developing a disease has \u00e9t\u00e9 proven\u00e9 \u00e0 several times. \r\n
<\/p>\r\nPatients are better monitored if the type and p\u00e9riodicit\u00e9 of the d\u00e9pistage are low\u00e9s on collaborative and inter-hospitali\u00e8res research, resulting in \u00e0 of the standardised\u00e9es procedures. A further advantage of maintaining a national register is the pooling of all available data and making them available for further analysis. \r\n
<\/p>\r\nThe registry allows people with an illness or disorder of 2019 to be informed about the cause and nature of their illness, as well as the measures they can take for their health. This improves the 2019 involvement of patients in their health, which has an impact on the 2019adh\u00e9rence to treatment and on well-\u00eatre. In addition, there are international registries of people with g\u00e9n\u00e9tic tumors.
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Tags
- hdbp0174
- 48dfc56d-5031-5f72-9ab2-61da4c04aa28