Description
A database was set up in Belgium to collect clinical and laboratory data including parental phenotype, diagnostic technique (neonatal screening or not), major clinical events (episodes of dactylitis, acute chest syndrome, severe anemia, infection, etc), number and duration of required hospitalizations, and treatment used. The objectives of this database are: a) to learn about characteristics of this population; b) to create the connection between practitioners (general, emergency and specialist practitioners ); c) unambiguous information; d) personalized contact; d) research projects; e) state-of-the art guidelines; f) information diffusion ( associations, authority); g) tool for educational projects; h) to serve of structure (framework) for other chronic pathologies.
Resources
| Name | Format | Description | Link |
|---|---|---|---|
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal JSON | JSON | Open resource | |
| 1cb3cc86-7655-471f-ac55-c47ba778ff97 Legal CSV | CSV | Open resource |
Tags
- affection-à-cellules-falciformes
- age
- âge
- anémie-à-hématie-falciforme
- belgian-hematological-society
- drepanocythaemia
- drepanocythemia
- drépanocytose
- erasmus-holspital-université-libre-de-bruxelles-(ulb)
- european-network-for-rare-and-congenital-anaemias-(enerca)
- gender
- geslacht
- haemoglobin-s-disease
- haemoglobin-s-s-disease
- hb-s-disease
- hémoglobinopathie-à-hématie-falciforme
- hemoglobin-s-disease
- hemoglobin-s-s-disease
- hereditary-haemoglobinopathy-disorder-homozygous-for-haemoglobin-s
- hereditary-hemoglobinopathy-disorder-homozygous-for-hemoglobin-s
- homozygote-sikkelcel-aandoening
- icd10-d50–d89
- leeftijd
- maladie-homozygote-à-cellules-falciformes
- mesh-d000755
- sex
- sexe
- sickle-cell-anemia
- sickle-cell-haemoglobin-ss-disease
- sickle-cell-hemoglobin-ss-disease
- sikkelcelaandoening
- sikkelcelanemie
- sikkelcel-hemoglobinopathie
- snomed-ct-127040003